If you’re helping your family member or friend through cancer treatment, you are a caregiver. This may look like helping with daily activities, visiting the doctor, or making meals. It could also mean providing care and giving emotional support. Caregivers play a very important role in a cancer patient’s journey. We hope these resources, guides, and videos provide helpful information.
Thoughts and Tips from other Caregivers
Caregiver Communication Template
Caregiver Class
Please visit our YouTube channel to find a helpful video created by Steve Krisfalusy. This video helps to provide important information on communication, caregiver roles, and what to expect. Please call us at 419-626-4548 if you want to see Steve cover a specific topic. Thanks for watching!
Steve’s Story:
I was diagnosed with Stage 4 Follicular Lymphoma on May 16, 2018, a date I will never forget. The cancer was already in my bone marrow, and when I asked my doctor how long I would live if I did nothing, she said about 90 days. Dr. Amy is scary smart, and I told her I needed to attend my son’s wedding in a few months; let’s see if you can get me there, even if it is in a basket. I started R-CHOP chemo treatments almost right away. The side effects, discomfort, and pain were a 9 every day. Shockingly, for the weekend of the wedding, my pain & discomfort dropped down from a 9 to a 1. Amazing! It returned to a 9 following the next treatment. After my chemo treatments, my scans showed no cancer at all.
I felt like I survived for a reason but did not know why. I started following a crumb trail, and I believe that led me to the why at least so far, since the crumb trail is still dynamic. I created a Cancer Patient Advocate program at the Seidman Center in Sandusky, Ohio, with the wonderful cooperation of the management & nursing staff. After just 4 months, we made a great impact on the emotional wellness of 86 patients. The oncology nurses loved it, also. I am still getting maintenance treatments, but many patients told me I gave them hope, even though I had no clue what I was doing. Then the Covid-19 virus hit, and everything stopped. We have 5 different new initiatives to implement once things return to the new normal. The feedback from the patients I connected with in my visits & chats was deeply touching, and all along, I felt there was more that could be done to help cancer patients, especially the newly diagnosed. I am anxious to return to following that crumb trail and volunteering as a cancer patient advocate. One journey has led me to another, and although I am just a passenger, I look forward to seeing what comes next. Be Strong – Stay Strong!